anyone here have hyper mobility or ehlers danlos syndrome?
Posted: February 28th, 2011 | Author: | Filed under: Q & A | Tags: Anyone, danlos, ehlers, here, hyper, Mobility, syndrome | 3 Comments »my girl friend was diagnosed with h.m. e.d. she has had 12 knee surgerys, 2 shoulder surgerys, she is hyper mobile in almost every joint. she has applied for disability 3 times only to be denied. she has enlisted legal help but it is moving very slowly. i just wonder if anyone out there has had problems getting disability and what other problems you may have encountered. she has been fighting this for about 9 years and is 41 now. each passing year is more difficult for her. i have done research on the web, but have not talked to anyone who has personally had this.
every dr. she has ever seen has provided a mountain of documentation to support her claim. every dr has said it is the worst case they have ever seen. her last visit to a podiatrist (2 days ago) revealed that her feet are now affected. once again the dr was amazed at the progression and her relative young age to be at this level. the main reason for the denials has been because of her age. it just slays me when i see people who are obese or alcholics/ druggies who have chosen the lifestyle they have, and they had no problem getting disability. for the record she is in colorado
Well… its like being double jointed, which can end up causing you pain and also increases your risk for injury to the joints. I have seen it a few times in my line of work. She should in fact qualify for disability assuming she has supportive documentation from her Dr.
Not sure what state you are in, but I would contact your local Independent living center and ask for advice. Usually claims that are denied are done so because the Dr. reports that the Disability is short term/and or does not submit the correct reports. Did she lose on appeal too? Always take a denied claim to appeal as its easier to submit better documents to a judge!
Please see the webpages for more details on Ehlers-Danlos syndrome.
I was diagnosed with ehlers-danlos in 1993, I was 10 years old (23 now). I have also been diagnosed with hyper-mobility. I already have osteoarthritis in my left knee and all my joints pop out. I tried for disability and got denied, I also have many other things wrong with me. I am currently seeking legal help but have yet to re-file my claim. There have been cases of EDS that won, I can’t find the web site again though. It indicated that EDS is also considered Undifferentiated Connective Tissue Disease, which is listed under 14.06 on the listings of impairments. I’m sure you will have other questions, so just ask me.